OUR VISION

Normal lives and lifespans for those diagnosed with ALS.

We believe in a world where every person with ALS and their families can lead normal lives and lifespans. This involves having access to needed diagnostic and treatment services, educational resources, and support services for improved quality of life.

Our Programs

Education, Advocacy, and Research 

Support for Children of ALS Patients

The Goode Foundation recognizes the tremendous impact that ALS has on the children of parents diagnosed with the disease. Still in the early planning stages, this program will support these children by providing peer-to-peer interaction through activities and educational programs such as:

• Education (materials, website links, and classes) to help them understand what their parent is going through

• Recreational activities and weekend getaways to release energy and have fun

• Tools and resources for improved quality of life (such as backpacks and supplies for school)

Travel Assistance Program 

Do you or a loved one receive care at the Emory ALS Center? And do you live outside of the metro Atlanta area? If so, you may be interested in the Goode Foundation Travel Assistance Program – designed to take the stress out of going to Emory University ALS Clinic in Atlanta.

ALS Clinic appointments typically last from 2 to 4 hours. As ALS progresses, extra time and energy to get the pALS up and dressed, into the car or van for travel, and into the Clinic building can turn that appointment into a 12+ hour day that is exhausting for both the patient and caregiver. Sometimes clinic appointments require an overnight stay for patients who live far from Emory.

The Goode Foundation has partnered with the Emory Conference Center Hotel to reserve and pay for a hotel room the night before an appointment at the Emory ALS Clinic or Emory Brain Health Center. Costs for parking and breakfast at the hotel are also covered. The hotel sponsors a free shuttle to the Emory ALS Clinic (Building B); however, if you have a power wheelchair and handicapped-accessible vehicle, we suggest that you drive to the clinic building and use the valet service. There is no hotel shuttle to the Emory Brain Health Center but valet service is available. 

Joining this program is easy: Simply complete this form (link text to the form) as soon as your appointment is scheduled to make sure that an accessible room is available.

 BECOME A PARTNER

OUR PARTNERS MAKE A DIFFERENCE

The Goode Foundation welcomes the opportunity to partner with corporations and foundations of all sizes. We work closely with our partners to develop mutually beneficial relationships that create positive change in the lives of individuals living with ALS. Whether your goal is increased awareness, employee engagement, or brand elevation, we are committed to engaging in creative, collaborative efforts in support of our mission and vision.